It is unrealistic of me to hope that as time goes by the Lily might improve a little. Be more steady on her feet. Be prepared to make more decisions for herself. I know some of her carers love to allow her to sit back while they do everything. I prefer to sit beside Lily and hand her the clothes she needs to put on next. And it takes longer. There is the constant 'I can't do it, I can't'. But I sit beside her and encourage her and eventually her arm fits into the sleeve. Or she manages to stand up and walk a little. Or sometimes as walk outside in the sun.
And it takes longer to do all this encouraging.
And it takes longer to sit there while Lily takes her time to 'do things for herelf'
Take a glass of water for instance: 'which glass will i choose?' asks Lily.
I always say, 'Lily you choose which glass'
And then i wait while the big decision making takes place.
But today was a big challenge. I got the word that Lily had slightly 'lost it' and her carer phoned me with her concerns. So another day when i had to leave work early and get back and pick up the pieces [so to speak]
But people keep the sort of thing that happened today very hush hush.
But for a carer one gets used to apologising the the professional carers, for what they had to deal with, and then trying to pick up the pieces.
So as soon as I came through the door I had to start cleaning up the carpet, the slippers, the clothing and sheets. But due to the vomiting Lily declined an evening meal. It turns out that the large chocolate rabbit that her favourite carer gave her for Easter - and should have been enough for a family of five for a month - was devoured by Lily (who is tiny, yet is unlikely to ever get fat)over the last 3 days. particularly today. No wonder she got an upset tummy.
She was checked out and pronounced OK save for too much chocolate that had upset the insides a little.
And very late this week one of the usual carers dropped the bombshell that she was unavailable next week. If she had told me earlier then maybe I could have organised a replacement.
But instead it will be me. Which means something i had planned to do has to be put to one side for another one or two weeks.
I have to acknowledge that i have some very useful innter strength that sustains me through all this.
Friday, April 17, 2009
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